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People who have SWS or a PWB and family members often experience a variety of feelings: • Alone, withdrawn, and isolated • Loss, grief, and sadness • Fear that others may find out about the condition or physical limitations • Hopelessness/Weariness • Anger • Embarrassment and Shame • Self-blame • Guilt related to how their condition affects family members and caregivers • For parents, guilt that they may have contributed to their child’s diagnosis • For parents, helplessness in easing their chil
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