At 35, columnist Alyssa Silva is making the transition from pediatric to adult healthcare — a daunting change given the ...
Evrysdi improved motor function and quality of life in children and adults with SMA, a real-world study in Hong Kong shows.
What do an unexpected job loss, a skunk, and a devastating diagnosis have in common? Columnist Helen Baldwin explains.
Electrical signals called far-field potentials may help track disease progression in SMA, a new study suggests.
Whole-body quantitative MRI, or qMRI, was found to detect subtle changes over time in the muscles of SMA adults, better than ...
Sleep problems, common in SMA, may involve both nighttime breathing issues linked to muscle weakness and brain changes, per a ...
Surgery to implant magnetically controlled growing rods is safe and effective for managing scoliosis in children with SMA ...
The depersonalization of medical devices can affect one's sense of identity, says columnist Sherry Toh, who argues for more ...
Children with spinal muscular atrophy (SMA) given the gene therapy Zolgensma (onasemnogene abeparvovec-xioi) in infancy are maintaining motor milestones after up to a decade of follow-up, according to ...
For whatever reason, society loves to infantilize disabled people. It’s practically a hobby for some people, be they medical professionals or middle-aged pedestrians looking to test their comedy ...
A few weeks ago, I saw the award-winning musical “Wicked” with my sister-in-law. I saw the show back in 2012 with my parents in New York City, and I jumped at the chance to buy tickets when I saw it ...
It’s been almost six years since the one-time gene therapy Zolgensma (onasemnogene abeparvovec-xioi) was first approved in the U.S. to treat young children with spinal muscular atrophy (SMA). Now, ...